For Researchers

As an organization dedicated to advancing healthcare and supporting those affected by chronic, complex, and rare conditions, we understand the critical role of researchers in driving progress and innovation. Our resources for researchers are designed to facilitate collaboration, knowledge sharing, and advocacy for funding essential research initiatives.

By fostering connections with researchers, we aim to amplify their voices and efforts in uncovering breakthrough treatments and cures for the conditions we champion. Through our advocacy for improved healthcare systems, including access to affordable medications, we strive to create an environment where researchers can thrive and patients can benefit from their groundbreaking discoveries.

In our pursuit of enhancing healthcare outcomes, we recognize the vital intersection between research, advocacy, and patient care. By providing researchers with the necessary support and resources, we empower them to explore new frontiers in medicine and develop life-changing interventions. Together, we can catalyze progress, advocate for increased funding, and ultimately transform the landscape of healthcare for the betterment of all individuals affected by chronic, complex, and rare conditions. Join us in our mission to drive research forward and pave the way for a brighter, healthier future.

As an organization dedicated to advancing healthcare and supporting those affected by chronic, complex, and rare conditions, we understand the critical role of researchers in driving progress and innovation. Our resources for researchers are designed to facilitate collaboration, knowledge sharing, and advocacy for funding essential research initiatives.

By fostering connections with researchers, we aim to amplify their voices and efforts in uncovering breakthrough treatments and cures for the conditions we champion. Through our advocacy for improved healthcare systems, including access to affordable medications, we strive to create an environment where researchers can thrive and patients can benefit from their groundbreaking discoveries.

In our pursuit of enhancing healthcare outcomes, we recognize the vital intersection between research, advocacy, and patient care. By providing researchers with the necessary support and resources, we empower them to explore new frontiers in medicine and develop life-changing interventions. Together, we can catalyze progress, advocate for increased funding, and ultimately transform the landscape of healthcare for the betterment of all individuals affected by chronic, complex, and rare conditions. Join us in our mission to drive research forward and pave the way for a brighter, healthier future.

OUR DOWNLOADABLE RESOURCES

At Rise & Rally, we are dedicated to supporting researchers in their vital work to advance medical knowledge and develop new treatments. That’s why we have created a variety of free downloadable resources to assist you in your research journey. These resources cover a wide range of topics, offering insights into chronic, complex, and rare conditions, as well as healthcare reform. Our goal is to provide you with the information and tools you need to make significant contributions to medical science. We hope these resources support and enhance your research efforts.

Leveraging Your Expertise for Chronic, Complex, and Rare Diseases AS A RESEARCHER

How to Be a Proactive Patient Advocate AS A ResearchER

Grant Writing and Funding Opportunities for Chronic, Complex, and Rare Condition Research

Understanding Chronic, Complex, And Rare Conditions As A Researcher

SOME OF OUR RESOURCES WHERE YOU CAN LEARN MORE & STAY IN THE KNOW

We recognize the importance of staying informed and connected in the ever-evolving landscape of healthcare research. That’s why we’ve developed a range of resources tailored to provide researchers with essential knowledge, inspiration, and a supportive community. Within these resources, you’ll discover valuable insights, practical advice, inspiring narratives, and avenues for networking with peers who share your dedication to advancing medical science. We invite you to explore these resources, engage with us, and connect with fellow researchers as we navigate the complexities of healthcare research together!

FOLLOW & ENGAGE ON SOCIALS

Connect with us on social media to stay updated on the latest developments and resources specifically tailored for medical educators and students. By joining our online community, you can share insights, experiences, get support and collaborate with others committed to improving healthcare education and patient care.

WATCH & Subscribe ON YOUTUBE

Subscribe to our YouTube channel for access to inspiring stories, educational content, webinar recordings, and expert interviews. Our videos will enhance your knowledge, teaching methods, and professional development. Stay connected with our latest content to support your journey as an educator or student in the healthcare field.

SUBSCRIBE TO OUR NEWSLETTER

Stay informed and up-to-date with our newsletter, “The Rally Report!” Receive the latest news, upcoming events, and recent developments in chronic, complex, and rare diseases. By subscribing, you’ll stay connected to the pulse of healthcare advancements and educational resources, helping you stay ahead in your field.

READ OUR
BLOG POSTS

Explore our blog for insightful articles, research updates, and expert advice on managing chronic illnesses, healthcare reform, and innovative teaching methods. Stay informed, empowered, and connected with our regularly updated blog posts, offering you relevant and timely content to support your professional growth.

LISTEN TO OUR
PODCAST

Tune into our podcast, “All Voices: Constructive Conversations To Create Change In Healthcare” to hear from leading experts, patients, and fellow educators as they discuss critical topics in healthcare. Gain valuable insights and support for navigating the complexities of healthcare education and reform that can benefit you in your profession.

ROAD TO REFORM ROADMAP

Join the Road to Reform Program, your comprehensive guide to advocating for healthcare improvements and driving positive change. With step-by-step guidance, educational resources, and community support, empower yourself to become an advocate for healthcare reform, benefiting both your students and future patients.

BOOK US TO SPEAK

At Rise & Rally, we are dedicated to sharing knowledge and educating others on chronic, complex, and rare conditions. We firmly believe in the power of advocacy and the urgent need for healthcare reform to better serve patients and researchers alike.

Our founder and president, along with other knowledgeable members, are available to speak to your research team, conference, or academic institution either in person or virtually.

Through engaging discussions, we aim to raise awareness, promote understanding, and inspire action towards positive change in healthcare research. Contact us to book a speaker and join us in our mission to drive impactful reform and support those affected by these challenging conditions.

BOOK US TO SPEAK

At Rise & Rally, we are dedicated to sharing knowledge and educating others on chronic, complex, and rare conditions. We firmly believe in the power of advocacy and the urgent need for healthcare reform to better serve patients and researchers alike.

Our founder and president, along with other knowledgeable members, are available to speak to your research team, conference, or academic institution either in person or virtually.

Through engaging discussions, we aim to raise awareness, promote understanding, and inspire action towards positive change in healthcare research. Contact us to book a speaker and join us in our mission to drive impactful reform and support those affected by these challenging conditions.

OUTSIDE RESOURCES

Our goal is to equip you with as many tools and sources of educational support as possible, ensuring you have access to the information and assistance you need. We know that there are incredible organizations that can help do this so we wanted to include resources from various reputable organizations that are able to provide invaluable resources we believe can further help you on your educational and advocacy journey. By compiling these diverse resources, we hope that researchers can find and get access to what they need to drive innovation and improve outcomes for those with chronic, complex, and rare conditions.

**We also want to note that we are not affiliated with these organizations and are only sharing them as a resource.

RARE DISEASE JOURNAL
DATABASE

The Rare Disease Journal Database provides essential resources for researchers focusing on rare diseases. Here, you can access a wide range of journal articles and publications that offer insights into the latest research and advancements in the field. These resources are designed to support your research efforts.

THE
COMMONWEALTH FUND

The Commonwealth Fund is a trusted source for healthcare research, policy analysis, and advocacy initiatives. Here you can stay informed with their extensive reports and publications covering the healthcare system, policy issues and engage with their resources to learn more and drive positive change in healthcare delivery and financing.

INSTITUTE FOR HEALTHCARE MPROVEMENT

The Institute for Healthcare Improvement provides resources to improve health and healthcare worldwide, focusing on chronic and rare diseases. Here, you can find educational materials and research programs to support your work. IHI’s mission is to improve health and healthcare through innovation and collaboration.

RARE NETWORK

The Rare Diseases Clinical Research Network is a collaborative initiative dedicated to advancing research on rare diseases. Here, you can explore their resources and clinical studies to stay updated on rare disease research, treatment options and engage with the community to contribute to ongoing research efforts.

GARD

The NIH’s Genetic & Rare Diseases provides comprehensive information about genetic and rare diseases, including research resources. Here, you can find valuable information for your research projects and collaborations you can get involved in. GARD aims to support research and improve outcomes for those with rare diseases.

ORPHANET

Orphanet is a comprehensive resource providing information on rare diseases and orphan drugs. It includes a database of rare diseases, clinical trials, and patient organizations. Medical educators and students can utilize Orphanet to enhance their knowledge about and how to manage rare diseases.

National Organization For Rare Disorders

The National Organization for Rare Disorders offers a wealth of resources for understanding rare diseases, including research updates, patient support programs, and educational materials. Their resources are crucial for medical educators and students looking to learn more and working with rare disease patients.

Association of chronic disease directors

The National Association of Chronic Disease Directors is a leading organization committed to preventing and managing a variety of chronic diseases. Here, you can access their plethora of chronic disease resources and educational materials to enhance your understanding of chronic disease management strategies.

NATIONAL
INSTITUTES OF
HEALTH

The NIH Research Training website is a vital resource for medical educators and students seeking opportunities for research training and advancement. Here, you can explore a wealth of educational programs, grants, information and fellowships designed to support and cultivate the next generation of medical researchers.

SCIENCEDIRECT

ScienceDirect is a leading full-text scientific database offering journal articles and book chapters on chronic, complex and rare diseases. Here, you can find valuable information to support your research. The journals here provide access to a wide range of scientific research we hope can support you in what you do.

AAAS

The American Association for the Advancement of Science (AAAS) offers a range of resources for researchers focusing on chronic and rare diseases. Here, you can access educational materials, funding information, networking opportunities and aims to advance science, engineering, and innovation throughout the world.

CLINICAL TRIALS

ClinicalTrials.gov provides a database of clinical studies conducted worldwide, with filters for rare and chronic diseases. Here, you can find information about ongoing trials and opportunities to collaborate with other researchers. This resource is essential for identifying new research and opportunities you can get involved in learning about.

GACD

Global Alliance for Chronic Diseases (GACD) supports global research collaborations on chronic diseases. Here, you can find resources and funding opportunities to support your research and contribute to international efforts in chronic disease management. The GACD’s work focuses on reducing the global burden of chronic diseases.

pubmed

PubMed offers a vast database of biomedical literature for researchers studying chronic, complex, and rare diseases. Here, you can access the latest research articles and reviews to support your scientific inquiries and studies. This comprehensive database ensures you stay up-to-date with the most recent advancements in your field.

THE BMJ

BMJ.com is an extensive online platform providing a wealth of medical research and knowledge, with a focus on peer-reviewed studies and expert insights. This resource is particularly valuable for those interested in chronic, complex, and rare diseases, offering a wide range of articles and data on these topics.

RESOURCES & WAYS TO HELP YOU GET INVOLVED WITH RISE & RALLY

There are countless opportunities for researchers to actively engage with our organization and contribute to our shared vision of a more equitable and compassionate healthcare system! Whether through volunteering, advocacy efforts, or knowledge-sharing initiatives, your involvement is crucial in driving meaningful change. Explore our range of involvement opportunities and discover how you can play a pivotal role in shaping the future of healthcare!

ROAD TO REFORM PROGRAM

Start your advocacy journey with our Road to Reform Program! This is the BEST place to begin, as we guide you through every step of getting involved with advocacy. Our program makes it easy and accessible, empowering you to make a difference! Join us to learn how you can influence policy and create change!

READ & SIGN
PETITIONS

You can read, sign and share petitions related to healthcare policies, research funding, and patient rights for issues we are advocating for. By adding your voice to these campaigns, you can help drive change and bring attention to important issues affecting the communities we serve.

CONTACT YOUR REPRESENTATIVES

You can contact your local, state, and federal representatives to discuss issues important to you. By sharing your personal experiences and the challenges you face, you can advocate for policies and changes that better support your needs and the needs of the research you are doing to help these communities.

REQUEST A PROCLAMATION

You can request proclamations from local or state governments to designate awareness days or months for specific conditions. This formal recognition can help raise public awareness and support for chronic, complex, and rare diseases, as well as healthcare reform efforts, driving community engagement and recognition!

MONUMENT
LIGHTING

You can participate in monument lighting advocacy to raise awareness for chronic, complex and rare disease advocacy and healthcare reform awareness day/month. By organizing an event, you can help bring visibility and support to our cause, fostering community awareness and understanding on a larger scale.

HOST A
FUNDRAISER

You can host a fundraiser to support Rise & Rally and what we are doing to raise awareness and change the education around chronic, complex and rare conditions and the need for healthcare reform. Whether through community events, online campaigns, or social media drives, fundraisers can really make a difference.

SHARE YOUR STORY WITH US

Share your journey as a researcher and your journey to wanting to get involved in studying what you do! Your experiences can provide valuable insights and encouragement to other researchers as well as others in our community! By sharing your story, you contribute to a collective voice that can drive change!

AWARENESS
DAY/MONTH

You can get involved in celebrating awareness days or months dedicated to specific conditions and our chronic, complex, and rare disease advocacy and healthcare reform efforts. By participating in events, sharing information, and wearing awareness colors, you can help increase visibility and understanding of these conditions!

SHOP, GET & WEAR OUR APPAREL

Express your support for us and our mission by browsing our selection of Rise & Rally apparel! From comfortable tees, to trendy crewnecks and cozy hoodies and more our merchandise allows you to wear your advocacy proudly. Every purchase directly contributes 100% of proceeds to achieving our goals and mission here at Rise & Rally.

COME ATTEND
AN EVENT

Participate in our events to engage directly with experts, educators, and students who are passionate about healthcare reform and patient advocacy. These events offer a plethora of opportunities for professional development, networking, and gaining new insights into managing chronic, complex, and rare conditions.

BECOME AN AMBASSADOR

Take your involvement with Rise & Rally to the next level by becoming an ambassador! As part of “The Ralliers,” our ambassador program, you’ll have the opportunity to raise awareness, advocate for solutions, represent our communities/mission, help us create change and foster connections for those seeking involvement in their state.

BECOME A
VOLUNTEER

Join our dedicated team of volunteers and lend your time and skills to support advocate for positive change in the healthcare system. As part of “The Risers” volunteer program, you’ll have the opportunity to make a meaningful impact, help support us in our mission and connect with others who share your passion for creating change!