As members of Rise & Rally, we understand the intricate challenges inherent in the role of caregiving. Whether you’re traversing the complexities of healthcare systems, advocating for enhanced support networks, seeking solace within a community of empathetic peers or all of the above, know that you’re not alone on this journey.
Within our caregiver resources, you’ll find a variety of resources that we hope will help you on your journey. Our mission is clear: to empower caregivers, advocates, and compassionate souls alike with the tools and insights needed to navigate their unique paths with confidence and resilience. 
From practical strategies for self-care to informed counsel on driving substantive change, we are committed to standing by you every step of the way.
As members of Rise & Rally, we understand the intricate challenges inherent in the role of caregiving. Whether you’re traversing the complexities of healthcare systems, advocating for enhanced support networks, seeking solace within a community of empathetic peers or all of the above, know that you’re not alone on this journey.
Within our caregiver resources, you’ll find a variety of resources that we hope will help you on your journey. Our mission is clear: to empower caregivers, advocates, and compassionate souls alike with the tools and insights needed to navigate their unique paths with confidence and resilience. 
From practical strategies for self-care to informed counsel on driving substantive change, we are committed to standing by you every step of the way.

OUR DOWNLOADABLE RESOURCES

At Rise & Rally, we are committed to providing caregivers with valuable information, education, and support. That’s why we have created a variety of free downloadable resources to support you on your journey as a caregiver. These resources cover a wide range of topics and are designed to offer practical guidance, emotional support, and helpful tips to assist you in your caregiving role. We hope that these will help support you on your journey!

CAREGIVER’S ADVOCACY COMMUNICATION GUIDE

Understanding Chronic, Complex, and Rare Conditions As A Caregiver

CAREGIVER SUPPORT GUIDE

SOME OF OUR RESOURCES WHERE YOU CAN LEARN MORE & STAY IN THE KNOW

We understand the immense challenges caregivers face and the importance of staying informed and connected. To support you in getting that information and connection, we have created a variety of resources designed to provide valuable information, inspiration, and a sense of community. Through these resources, you’ll find helpful information, practical guidance, uplifting stories, and opportunities to connect with others who understand the unique experiences of caregiving. We hope you’ll come get support and connect with us (and other caregivers) here!

FOLLOW & ENGAGE ON SOCIALS

Engage with us on social media to stay updated on the latest news and resources! Join our online community, share your experiences, and connect with others who understand the challenges you face as a caregiver. Following us helps you stay involved, informed, and uplifted by our collective advocacy efforts!

WATCH & SUBSCRIBE ON YOUTUBE

Join us on our YouTube channel where you’ll find inspiring stories, educational content, webinar recordings, and expert interviews! Our videos are designed to inspire, educate, empower, and support you on your caregiving journey, helping you stay informed and connected. Subscribe today to stay updated with all our latest content and resources!

SUBSCRIBE TO OUR NEWSLETTER

Stay up-to-date and in the know with our newsletter, “The Rally Report!” Whether you’re eager to learn about upcoming events, the latest news, or recent developments in the realm of chronic, complex, and rare diseases, our newsletter has you covered. By subscribing, you’ll be able to stay connected and supported!

READ OUR
BLOG POSTS

Explore our blog for insightful articles, personal stories, and expert advice on caregiving, chronic illnesses, and healthcare reform. Stay informed, empowered, and connected with our latest blog posts, updated regularly to provide you with relevant and timely content that supports you on your caregiving journey.

LISTEN TO OUR
PODCAST

Tune into our podcast, “All Voices: Constructive Conversations To Create Change In Healthcare” where you will hear from experts, patients, and fellow caregivers as they share their experiences and wisdom, providing you with valuable insights and support as to how to navigate the healthcare system and the changes we are working toward!

ROAD TO REFORM PROGRAM

Embark on the Road to Reform Program, your comprehensive guide to getting involved in healthcare advocacy and driving positive change. Through step-by-step guidance, educational resources, and community support, empower yourself to become an effective advocate for yourself and your loved ones in the healthcare system.

OUTSIDE RESOURCES

Our goal is to equip caregivers with as many tools and sources of support as possible, ensuring they have access to the information and assistance they need. We know that there are incredible organizations that can help do this so we wanted to include resources from various reputable organizations that offer valuable services and support tailored to caregivers. By compiling these diverse resources, we hope that caregivers can find and get access to what they need so they can continue to caregive for their loved one and themselves. 
**We also want to note that we are not affiliated with these organizations and are only sharing them as a resource. 

SUPPORT RESOURCES

CAREGIVER ACTION NETWORK

Caregiver Action Network is a leading advocacy organization providing resources, support, and education to family caregivers across the nation. Through their initiatives and resources, they empower caregivers to advocate for their needs and navigate the complexities of caregiving with confidence.

FAMILY CAREGIVER ALLIANCE

Family Caregiver Alliance offers a comprehensive range of services to support family caregivers, including information, education, and advocacy. With a focus on addressing the unique challenges faced by caregivers, FCA provides resources to help them navigate their caregiving journey and access needed support.

ALLIANCE FOR CAREGIVING

The Alliance for Caregiving is dedicated to advancing research, policy, and support for family caregivers through collaboration and advocacy efforts. By partnering with stakeholders and policymakers, they work to raise awareness of caregiving issues and promote policies that improve the lives of caregivers and their loved ones.

THE CAREGIVER SPACE

The Caregiver Space provides an online community and resource hub for caregivers, offering a safe and supportive space to connect, share experiences, and find practical advice. Through articles, forums, and virtual events, caregivers can access valuable resources and connect with others who understand their journey.

ARCH NATIONAL RESPITE NETWORK

ARCH National Respite Network is committed to promoting access to respite care for family caregivers across the United States. Through their resources and services, they aim to relieve caregiver stress, prevent burnout, and ensure that caregivers have the support they need to continue providing care for their loved ones.

LOTSA HELPING HANDS

Lotsa Helping Hands is a caregiving coordination platform that enables communities to come together and support individuals and families facing health challenges. With shared calendars, task lists, and messaging, they facilitate collaboration among caregivers, friends and volunteers to provide assistance and support.

CARINGBRIDGE

CaringBridge offers free, personalized websites that allow people facing health challenges to stay connected with their loved ones and receive support. Through CaringBridge, individuals can share updates on their health journey, receive messages of encouragement, and coordinate help from friends and family members, fostering a sense of community during difficult times.

CARINGVILLAGE

CaringVillage offers caregivers a platform to create customized care plans, coordinate tasks, and share updates with their support network. By facilitating communication and organization, they help caregivers manage their responsibilities more effectively, ensuring their loved ones receive consistent and coordinated care from their community of supporters.

CARINGINFO

CaringInfo, under the auspices of the National Hospice and Palliative Care Organization (NHPCO), offers a wealth of resources for individuals and families navigating end-of-life care. Their website serves as a comprehensive hub, providing guides, toolkits, and educational materials to facilitate informed decision-making about advance care planning and caregiving.

Y CARE

Y Care provides caregivers with a digital platform to monitor and manage the health of their loved ones. With features like real-time health tracking, care coordination, and data sharing, Y Care helps caregivers stay informed and proactive in their caregiving duties, ensuring comprehensive and continuous care for their loved ones.

CARELINX

CareLinx connects caregivers with professional in-home care providers, offering a network of vetted caregivers for various needs. By facilitating access, CareLinx supports family caregivers in ensuring their loved ones receive quality assistance, providing peace of mind and additional support for managing daily caregiving tasks.

SHIFTCARE

ShiftCare offers a software solution for caregivers to manage care schedules, tasks, and documentation. By streamlining administrative tasks, ShiftCare allows caregivers to focus more on providing quality care, reducing the burden of paperwork and ensuring that all aspects of caregiving are well-coordinated and documented.

MY CARELINQ

My CareLinq is a digital platform designed to streamline communication and coordination between caregivers, patients, and healthcare providers. By centralizing medical information, appointment schedules, and care plans, My CareLinq empowers caregivers to stay informed and engaged in their loved one’s care while facilitating collaboration with the healthcare team.

FINDHELP

FindHelp connects caregivers with local resources and services, such as food assistance, housing support, and healthcare. By offering a searchable database of community resources, FindHelp ensures that caregivers can access the help they need to support their loved ones, making it easier to find and utilize available support services in their area.

CAREGIVING.COM

Caregiving.com offers caregivers a communication app to stay connected with their family and care team. By providing tools for sharing updates, coordinating care, and keeping everyone informed, Caregiving.com is able to enhance collaboration and reduce the stress of caregiving, ensuring that all members of the care team are aligned, informed and able to support best.

INSIGHT TIMER

Insight Timer provides caregivers with access to a vast library of guided meditations, relaxation techniques, and mindfulness exercises. By promoting self-care and stress reduction, Insight Timer helps caregivers maintain their mental and emotional well-being, ensuring they can provide compassionate care while taking care of their own health and balance.

NAMI

NAMI provides caregivers with comprehensive support and resources for managing mental health conditions. Offering educational programs, support groups, and advocacy initiatives, NAMI helps caregivers understand mental health challenges and connect with others in similar situations. Through NAMI, caregivers can access valuable information, find emotional support.

AARP

Access invaluable resources provided by AARP, empowering caregivers with advanced directives and essential planning tools. From living wills to healthcare proxies, AARP equips caregivers with the necessary documents to ensure their loved ones’ wishes are respected. Stay prepared and informed with AARP’s healthcare planning resources.

FINANCIAL RESOURCES

GOFUNDME

GoFundMe offers caregivers a platform to raise funds for medical expenses, treatment costs, and other caregiving-related needs. By creating a personalized fundraising campaign, caregivers and patients can share their story, connect with a wider community of supporters, and receive financial contributions. 

RX SAVER

Rx Saver helps caregivers save money on prescription medications by providing access to discount prices at local pharmacies. By searching for the best prices and offering coupons to ge those prices, Rx Saver enables caregivers to reduce the financial burden of managing medications for their loved ones.

HEALTHWELL

HealthWell Foundation assists caregivers by providing financial support for medical treatments and medications. Their grants help alleviate the financial burden of caregiving, ensuring that patients receive the necessary care without imposing excessive costs on their families, thereby reducing the stress and financial strain on caregivers.

NEEDYMEDS

NeedyMeds offers caregivers access to a comprehensive database of financial assistance programs for medications and healthcare costs. By providing information on programs, coupons, and grants, they help caregivers reduce the financial strain of managing chronic illnesses, ensuring that their loved ones receive what they need.

COVER MY MEDS

Cover My Meds assists caregivers by simplifying the process of obtaining medication prior authorizations. By ensuring timely access to necessary medications, Cover My Meds reduces the administrative burden on caregivers and helps them focus on care, ensuring their loved ones receive the medications they need.

ACCESSIA HEALTH

Accessia Health offers services and resources for financial support and assistance programs for individuals and caregivers managing healthcare expenses. Through their services and resources, caregivers can access resources such as financial aid programs, insurance navigation assistance, and reimbursement support.

NATIONAL ORGANIZATION FOR RARE DISORDERS

NORD offers resources and support for caregivers of individuals with rare disorders. Through their advocacy, education, and research initiatives, NORD helps caregivers navigate the unique challenges of rare diseases, ensuring they have access to necessary information, support networks, and specialized care resources to effectively manage their loved ones’ conditions.

ADVOCACY SUPPORT RESOURCES

PATIENT ADVOCATE FONDATION

Patient Advocate Foundation offers comprehensive advocacy support and resources for patients and caregivers facing healthcare challenges. With personalized case management services, financial assistance programs, and policy advocacy efforts, they ensure that individuals are able to navigate the system with ease.

GREATER HEALTH ADVOCATES

Greater Health Advocates provides tailored advocacy support for patients and caregivers, offering guidance, education, and access to resources to navigate complex healthcare issues. Their aim is to empower individuals to make informed decisions about their care and so they can be able to advocate effectively for their needs within the healthcare system.

WHEELHOUSE NAVIGATION

Wheelhouse Health Navigation is committed to providing advocacy support for patients and caregivers, offering guidance, educational resources, and empowerment programs to navigate the complexities of healthcare. By providing expert assistance and support, they help individuals and families effectively advocate for their healthcare needs.

PATIENTS RISING

Patients Rising is dedicated to advocating for patients and caregivers by providing a wide range of resources, including education, support, and policy initiatives. Through their efforts, they empower individuals to effectively navigate healthcare challenges and advocate for their needs with confidence.

MEDICAL BOARD

The Medical Board provides a platform for caregivers to report concerns about healthcare providers. By filing a report, caregivers can address issues such as malpractice, unprofessional behavior, or substandard care, helping to maintain high standards within the healthcare system and protect the well-being of their loved ones.

TRACKING RESOURCES

CAREZONE

CareZone helps caregivers manage medications, appointments, and health records through an easy-to-use app. By centralizing health information, CareZone simplifies the caregiving process and ensures that caregivers can stay on top of their loved ones’ needs, providing timely and accurate care while reducing the stress of managing multiple responsibilities.

MEDISAFE

Medisafe provides caregivers with a medication management app that offers reminders, tracking, and educational resources. By helping caregivers stay organized and informed, Medisafe ensures that medication schedules are followed accurately, reducing the risk of missed doses or medication errors, and promoting better health outcomes for their loved ones.

SYMPLE

Symple offers caregivers a tool to track symptoms, medications, and overall health. By providing a visual record of past and present health data, Symple helps caregivers monitor their loved ones’ well-being and communicate more effectively any changes with healthcare providers, ensuring that any changes in health are promptly addressed and managed.

RESOURCES TO GET INVOLVED WITH RISE & RALLY AS A CAREGIVER

We understand the immense challenges caregivers face and the importance of staying informed and connected. To support you on this journey, we offer a variety of resources designed to provide valuable information, inspiration, and a sense of community. Through these resources, you’ll find helpful information, practical guidance, uplifting stories, and opportunities to connect with others who understand the unique experiences of caregiving. We hope you’ll come get support and connect with us (and other caregivers) here!

ROAD TO REFORM PROGRAM

Start your advocacy journey with our Road to Reform Program! This is the BEST place to begin, as we guide you through every step of getting involved with advocacy. Our program makes it easy and accessible, empowering you to make a difference! Join us to learn how you can influence policy and create change!

READ & SIGN
PETITIONS

You can read, sign and share petitions related to healthcare policies, research funding, and patient rights for issues we are advocating for. By adding your voice to these campaigns, you can help drive change and bring attention to important issues affecting your/our communities we serve, amplifying the collective voice and fostering societal support!

CONTACT YOUR REPRESENTATIVES

You can contact your local, state, and federal representatives to discuss issues important to you. By sharing your personal experiences and the challenges you face, you can advocate for policies and changes that better support your needs and the needs of your loved ones, influencing legislative decisions.

REQUEST A PROCLAMATION

You can request proclamations from local or state governments to designate awareness days or months for specific conditions. This formal recognition can help raise public awareness and support for chronic, complex, and rare diseases, as well as healthcare reform efforts, driving community engagement and recognition!

MONUMENT
LIGHTING

You can participate in monument lighting advocacy to raise awareness for your loved one’s condition. By organizing or joining events where landmarks are lit in specific colors representing various health conditions, you can help bring visibility and support to your cause, fostering community awareness and understanding on a larger scale. 

HOST A
FUNDRAISER

You can host fundraisers to support your loved ones and others facing similar challenges! Whether through community events, online campaigns, or social media drives, these efforts can raise essential funds for medical expenses, research, and advocacy initiatives, benefiting those in need and raising awareness!

SHARE YOUR STORY WITH US

Share your caregiving journey with us and help inspire and support others in our community! Your experiences can provide valuable insights and encouragement to those facing similar challenges, fostering a sense of shared understanding and solidarity. By sharing your story, you contribute to a collective voice that can drive change!

AWARENESS
DAY/MONTH

You can get involved in celebrating awareness days or months dedicated to specific conditions and our chronic, complex, and rare disease advocacy and healthcare reform efforts. By participating in events, sharing information, and wearing awareness colors, you can help increase visibility and understanding of these conditions!

SHOP, GET & WEAR OUR APPAREL

Express your support for caregivers and our mission by browsing our selection of apparel! From comfortable tees to cozy hoodies, our merchandise allows you to wear your advocacy proudly. Every purchase directly contributes 100% of proceeds to achieving our goals and mission here at Rise & Rally.

ATTEND AN
EVENT

Join our events to connect with fellow caregivers, healthcare professionals, and advocates who share your passion for supporting those with chronic, complex, and rare conditions. These events provide valuable opportunities to learn, share experiences, and gain practical tips and strategies. 

BECOME AN AMBASSADOR

Take your involvement with Rise & Rally to the next level by becoming an ambassador. As part of “The Ralliers,” our ambassador program, you’ll have the opportunity to raise awareness, advocate for solutions, represent our communities/mission and foster connections for those seeking involvement in their state.

BECOME A
VOLUNTEER

Join our dedicated team of volunteers and lend your time and skills to support caregivers and advocate for positive change in the healthcare system. As part of “The Risers” volunteer program, you’ll have the opportunity to make a meaningful impact and connect with others who share your passion for caregiving.