Policymakers play a pivotal role in our mission to transform healthcare and improve the lives of individuals with chronic, complex, and rare conditions. Your position allows you to create and influence legislation that can bring about significant change, making healthcare more accessible, affordable, and effective for those who need it most. 
We deeply value your involvement and expertise, as your support is crucial in driving the legislative advancements necessary for meaningful healthcare reform.
Our Policymakers Resources page is designed to equip you with the information, insights, and connections needed to champion the causes that matter most to our community. These resources will help you understand the challenges faced by patients, caregivers, and healthcare professionals, connect with the community, and hear our ideas for improvement. 
By working together, we can take decisive action to pass new legislation that supports individuals with chronic, complex, and rare conditions. We appreciate your dedication to this cause and look forward to collaborating with you to create a brighter future for all.
Policymakers play a pivotal role in our mission to transform healthcare and improve the lives of individuals with chronic, complex, and rare conditions. Your position allows you to create and influence legislation that can bring about significant change, making healthcare more accessible, affordable, and effective for those who need it most. 
We deeply value your involvement and expertise, as your support is crucial in driving the legislative advancements necessary for meaningful healthcare reform.
Our Policymakers Resources page is designed to equip you with the information, insights, and connections needed to champion the causes that matter most to our community. These resources will help you understand the challenges faced by patients, caregivers, and healthcare professionals, connect with the community, and hear our ideas for improvement. 
By working together, we can take decisive action to pass new legislation that supports individuals with chronic, complex, and rare conditions. We appreciate your dedication to this cause and look forward to collaborating with you to create a brighter future for all.

OUR DOWNLOADABLE RESOURCES

At Rise & Rally, we recognize the critical role policymakers play in shaping healthcare. That’s why we have created a variety of free downloadable resources to assist you in your efforts to create positive change. These resources cover a wide range of topics, offering insights into chronic, complex, and rare conditions, the patient experience, and necessary healthcare reforms. We aim to provide you with the information and tools needed to understand the issues and advocate for effective legislation. We hope these resources support you in your policy-making efforts!

Understanding Chronic, Complex, and Rare Conditions AS A POLICYMAKER

Effective Advocacy for Those with Chronic, Complex, and Rare Conditions as a Policymaker

Advocating for Chronic, Complex, and Rare Diseases AS A POLICYMAKER

SOME OF OUR RESOURCES WHERE YOU CAN LEARN MORE & STAY IN THE KNOW

We recognize the importance of staying informed and connected in the ever-evolving landscape of healthcare policy. That’s why we’ve developed a range of resources tailored to provide policymakers with essential knowledge, inspiration, and a supportive community. Within these resources, you’ll discover valuable insights, practical advice, inspiring narratives, and avenues for networking with peers who share your commitment to creating effective healthcare policies. We invite you to explore these resources, engage with us, and connect with fellow policymakers as we navigate the complexities of healthcare reform together!

FOLLOW & ENGAGE ON SOCIALS

Connect with us on social media to stay updated on the latest developments and resources specifically tailored for medical educators and students. By joining our online community, you can share insights, get to know the community and collaborate with others committed to improving healthcare education and patient care. 

WATCH & Subscribe ON YOUTUBE

Subscribe to our YouTube channel for access to inspiring stories, educational content, webinar recordings, and expert interviews. Our videos will enhance your knowledge, teaching methods, and professional development. Stay connected with our latest content to support your journey as an educator or student in the healthcare field.

SUBSCRIBE TO OUR NEWSLETTER

Stay informed and up-to-date with our newsletter, “The Rally Report!” Receive the latest news, upcoming events, and recent developments in chronic, complex, and rare diseases. By subscribing, you’ll stay connected to the pulse of healthcare advancements and educational resources, helping you stay ahead in your field.

READ OUR
BLOG POSTS

Explore our blog for insightful articles, research updates, and expert advice on managing chronic illnesses, healthcare reform, and innovative teaching methods. Stay informed, empowered, and connected with our regularly updated blog posts, offering you relevant and timely content to support your professional growth.

LISTEN TO OUR
PODCAST

Tune into our podcast, “All Voices: Constructive Conversations To Create Change In Healthcare” to hear from leading experts, patients, and fellow educators as they discuss critical topics in healthcare. Gain valuable insights and support for navigating the complexities of healthcare education and reform that can benefit you in your profession.

ROAD TO REFORM ROADMAP

Join the Road to Reform Program, your comprehensive guide to advocating for healthcare improvements and driving positive change. With step-by-step guidance, educational resources, and community support, empower yourself to become an effective advocate benefiting both your students and future patients.

BOOK US TO SPEAK

At Rise & Rally, we are dedicated to sharing knowledge and educating others on chronic, complex, and rare conditions. We firmly believe in the power of advocacy and the urgent need for healthcare reform to better serve patients and policymakers alike. 
Our founder and president, along with other knowledgeable members, are available to speak to your legislative body, policy forum, or governmental agency either in person or virtually.
Through engaging discussions, we aim to raise awareness, promote understanding, and inspire action towards positive change in healthcare policy. Contact us to book a speaker and join us in our mission to drive impactful reform and support those affected by these challenging conditions.

OUTSIDE RESOURCES

Our goal is to equip you with as many tools and sources of educational support as possible, ensuring you have access to the information and assistance you need. We know that there are incredible organizations that can help do this so we wanted to include resources from various reputable organizations that are able to provide invaluable resources we believe can further help you on your educational and advocacy journey. By compiling these diverse resources, we hope that policymakers can find and get access to what they need to craft and implement policies that support those with chronic, complex, and rare conditions.
**We also want to note that we are not affiliated with these organizations and are only sharing them as a resource. 

The National Organization For Rare Disorders

The National Organization For Rare Disorders offers policymakers resources and advocacy tools to improve care for rare disease patients. Here, you can access policy reports, patient stories, and best practice guidelines to support your policy initiatives. NORD helps policymakers advocate for support.

THE
COMMONWEALTH FUND

The Commonwealth Fund provides research and analysis on healthcare policy, with a focus on improving access and quality for those with chronic and rare conditions. Here, you can find reports, policy briefs, and data to support your healthcare reform efforts. The Commonwealth Fund aids policymakers in developing policies.

INSTITUTE FOR HEALTHCARE MPROVEMENT

The Institute for Healthcare Improvement provides policymakers with resources to improve healthcare quality and safety, with a focus on chronic and rare diseases. Here, you can access improvement tools, policy recommendations, and research findings to guide your healthcare reform efforts. 

The Alliance For Health Policy

The Alliance for Health Policy provides policymakers with non-partisan information on health policy issues, including chronic and rare diseases. Here, you can access briefings, reports, and expert analysis to inform your policy decisions. The Alliance supports policymakers in understanding complex health policy issues.

everylife foundation

The EveryLife Foundation for Rare Diseases provides policymakers with critical resources and advocacy tools to support rare disease patients. Here, you can access policy recommendations, patient stories, learn more about policy and read research reports focused on improving care and advancing treatments for rare conditions.

The National Health Council

The National Health Council (NHC) offers policymakers comprehensive resources and advocacy tools to improve healthcare for people with chronic and rare diseases. Here, you can access policy reports, patient perspectives, and best practice guidelines aimed at creating a more patient-centered healthcare system.

THE CHRONIC CARE POLICY ALLIANCE

The Chronic Care Policy Alliance (CCPA) provides valuable resources for policymakers focused on improving care for individuals with chronic conditions. Here, you can access policy briefs, research insights, education, resources and advocacy tools designed to promote effective care for those with chronic conditions and healthcare reforms. 

Association Of Chronic Disease

The National Association of Chronic Disease Directors (NACDD) offers comprehensive resources for policymakers dedicated to addressing chronic disease prevention and management. Here, you can access policy briefs, research reports, and best practices aimed at enhancing public health initiatives and healthcare reform.

The Kaiser Family Foundation

The Kaiser Family Foundation (KFF) provides non-partisan information and resources for policymakers focused on healthcare policy, including chronic and rare diseases. Here, you can access policy analysis, compare bills, access health tracking, and public opinion data to inform and shape effective healthcare policies. 

RESOURCES & WAYS TO HELP YOU GET INVOLVED WITH RISE & RALLY

There are countless opportunities for policymakers to actively engage with our organization and contribute to our shared vision of a more equitable and compassionate healthcare system! Whether through volunteering, advocacy efforts, or knowledge-sharing initiatives, your involvement is crucial in driving meaningful change. Explore our range of involvement opportunities and discover how you can play a pivotal role in shaping the future of healthcare!

ROAD TO REFORM ROADMAP

Start your advocacy journey with our Road to Reform Program! This is the BEST place to begin, as we guide you through every step of getting involved with advocacy. Our program makes it easy and accessible, empowering you to make a difference! Join us to learn how you can influence policy and create change to make the world a better place for all!

BE A GUEST ON OUR PODCAST

We invite policymakers to join us as guests on our podcast to discuss critical healthcare issues and policy solutions. Your insights and expertise are invaluable in shaping healthcare reform efforts. By sharing your perspectives, you can help drive meaningful change and advocate for policies that improve patient outcomes and access to care!

COME ATTEND
AN EVENT

Participate in our events to engage directly with experts, advocates, and other policymakers who are passionate about healthcare reform and patient advocacy. These events offer a plethora of opportunities for networking, learning, and gaining new insights into supporting those with chronic, complex, and rare conditions.

BOOK US TO
COME SPEAK

Our founder & president Haley James, and other knowledgeable members are available to speak with policymakers, their offices, groups etc. offering valuable insights and perspectives on pressing healthcare issues. Whether it’s in-person or virtual, we are committed to engaging with policymakers to drive positive change in healthcare.

AWARENESS
DAY/MONTH

You can get involved in celebrating awareness days or months dedicated to specific conditions and our chronic, complex, and rare disease advocacy and healthcare reform efforts. By participating in events, sharing information, and wearing awareness colors, you can help increase visibility and understanding of these conditions!

SHOP, GET & WEAR OUR APPAREL

Express your support for us and our mission by browsing our selection of Rise & Rally apparel! From comfortable tees to cozy hoodies, mugs, beanies and more! Our merchandise allows you to wear your advocacy proudly. Every purchase directly contributes 100% of proceeds to achieving our goals and mission here at Rise & Rally.