Policy Map

Sometimes, the hardest part about advocacy is knowing where to start. You might be eager to take action but unsure of which legislative initiatives are currently underway and how you can contribute. That’s why we’ve developed our Policy Map—to provide you with a map of relevant legislation in your state, empowering you to explore, understand, and advocate for the issues that matter most to you and your community.

Our interactive United States map allows you to click on your state to access a curated list of our current state and federal legislative priorities tailored to your region. Dive into each legislative priority to gain insights into its impact and significance within your community. From there, you can take meaningful action by exploring ways to get involved or simply stay informed about the latest developments by signing up for our newsletter.

Together, we really can make a difference by raising awareness, driving advocacy efforts, and ultimately shaping policies that positively impact the lives of individuals and families living with chronic, complex, and rare diseases.