WHAT WE STAND FOR
Our policy stances are more than just statements; they’re the backbone of our advocacy efforts, offering a clear direction for our initiatives and shaping our engagements with policymakers and stakeholders.
They underscore our steadfast dedication to advocating for accessible and equitable healthcare for all, propelling research advancements, and protecting the rights of individuals grappling with chronic, complex, and rare conditions, as well as those dedicated caregivers and physicians supporting them.
We value transparency and communication which is why we created our policy stances page, so that you can easily see where we stand for and what we don’t. You can check out and learn more about our policy stances in detail below and join us in our mission to create positive change in the healthcare landscape!
WHAT WE STAND FOR
Our policy stances are more than just statements; they’re the backbone of our advocacy efforts, offering a clear direction for our initiatives and shaping our engagements with policymakers and stakeholders.
They underscore our steadfast dedication to advocating for accessible and equitable healthcare for all, propelling research advancements, and protecting the rights of individuals grappling with chronic, complex, and rare conditions, as well as those dedicated caregivers and physicians supporting them.
We value transparency and communication which is why we created our policy stances page, so that you can easily see where we stand for and what we don’t. You can check out and learn more about our policy stances in detail below and join us in our mission to create positive change in the healthcare landscape!
OUR POLICY STANCES
Our policy stances reflect our commitment to advocating for comprehensive, inclusive, and equitable healthcare reform. We firmly believe in advancing health equity, promoting patient-centered care, and supporting the unique needs of those with chronic, complex, and rare conditions. Our stances are not just statements but guiding principles that shape our actions and interactions with policymakers, stakeholders, and the communities we serve. We oppose any legislation, movements, or rules that undermine these values, recognizing the critical need for systemic changes to ensure that every individual has access to the care, support, and resources they deserve. By clearly articulating our policy stances, we aim to inspire action, foster collaboration, and drive meaningful change in the healthcare landscape.
HEALTHCARE ACCESS
• We are for healthcare access: Our organization advocates for policies and initiatives that ensure equitable access to affordable, quality healthcare for all individuals, regardless of their socio-economic status, geographical location, or health condition. We support measures to expand healthcare coverage, reduce out-of-pocket costs, and address disparities in access to care.
• We are against legislation, movements, rules, etc. that hinder healthcare access: Our organization opposes any policies or initiatives that limit access to affordable and quality healthcare services, including barriers to insurance coverage, discriminatory practices, and restrictions on essential health benefits.
PATIENT RIGHTS
• We are for patient rights: Our organization is committed to upholding the rights and dignity of patients, ensuring that they have access to comprehensive healthcare information, privacy protections, and opportunities for shared decision-making. We support policies that empower patients to make informed choices about their care and treatment, respecting their autonomy and preferences.
• We are against legislation, movements, rules, etc. that hinder patient rights: Our organization stands against any efforts to undermine patient rights and autonomy, including policies that restrict access to comprehensive healthcare information, infringe on patient privacy, or diminish the role of patients in shared decision-making.
PUBLIC HEALTH INITIATIVES
• We are for public health initiatives: Our organization promotes evidence-based public health strategies to prevent disease, protect communities, and improve population health outcomes. We advocate for policies that prioritize public health funding, support disease surveillance and response efforts, and promote health equity and social determinants of health.
• We are against legislation, movements, rules, etc. that hinder public health initiatives: Our organization condemns policies that undermine public health efforts, including cuts to funding for public health programs, restrictions on disease surveillance and response, and efforts to roll back evidence-based public health interventions.
HEALTHCARE REFORM
• We are for Healthcare Reform: We support comprehensive healthcare reform that ensures universal coverage, reduces costs, and improves the quality of care. Our organization advocates for policies that expand access to affordable healthcare, protect patients’ rights, and promote preventive care and wellness programs.
• We are against Legislation, Movements, Rules, etc., that Hinder Healthcare Reform: We oppose any efforts to repeal or weaken healthcare reforms that expand coverage, reduce costs, and improve care quality, including actions that undermine Medicaid expansion, essential health benefits, and protections for pre-existing conditions.
PATIENT-CENTERED CARE
• We are for Patient-Centered Care: Our organization believes in the importance of patient-centered care, which prioritizes the individual needs, preferences, and goals of patients in healthcare decision-making. We support policies that promote shared decision-making, respect patient autonomy, and foster strong patient-provider partnerships to improve health outcomes and enhance patient experiences.
• We are against Legislation, Movements, Rules, etc., that Hinder Patient-Centered Care: We oppose any policies that undermine patient autonomy, limit patient access to information and resources, or erode the patient-provider relationship, including restrictions on informed consent, paternalistic healthcare practices, and barriers to patient engagement in care planning and decision-making.
HEALTH EQUITY
• We are for Health Equity: Our organization is committed to addressing health disparities and advancing health equity for all individuals, regardless of race, ethnicity, gender, sexual orientation, or socio-economic status. We support policies that promote equitable access to healthcare, address social determinants of health, and reduce systemic barriers that contribute to health inequities.
• We are against Legislation, Movements, Rules, etc., that Hinder Health Equity: We oppose any policies that perpetuate health disparities and inequities, including systemic racism, discrimination in healthcare delivery, and inadequate access to essential health services and resources in underserved communities.
AFFORDABLE CARE ACT
• We are for the Affordable Care Act: Our organization strongly supports the Affordable Care Act as a vital framework that expands healthcare access to millions of Americans, particularly those with chronic, complex, and rare diseases. The ACA’s provisions, including coverage for pre-existing conditions, essential health benefits, and Medicaid expansion, are crucial for ensuring comprehensive and equitable healthcare for all. We advocate for enhancing the ACA to further improve affordability, accessibility, and quality of care.
• We Are Against Legislation, Movements, Rules, Etc., That Undermine The Affordable Care Act: We oppose any efforts to repeal, weaken, or dismantle the Affordable Care Act. Such actions would jeopardize the healthcare coverage of millions, particularly those with pre-existing conditions and complex health needs. We are against policies that seek to reduce essential health benefits, rollback Medicaid expansion, or promote inadequate health plans that fail to provide comprehensive coverage.
RESEARCH ADVANCEMENTS
• We are for research advancements: We support policies and investments that promote scientific research and innovation in healthcare, driving progress in disease prevention, diagnosis, and treatment. Our organization advocates for increased funding for research programs, streamlined regulatory processes, and enhanced collaboration among stakeholders to accelerate medical breakthroughs.
• We are against legislation, movements, rules, etc. that hinder research advancements: We oppose policies that impede scientific progress and innovation in healthcare, including funding cuts to research programs, regulatory barriers to medical breakthroughs, and limitations on data sharing and collaboration
DISABILITY RIGHTS
• We are for disability rights: We stand in solidarity with individuals living with disabilities and support policies that promote their rights, independence, and inclusion in society. Our organization advocates for measures to enhance accessibility, eliminate discrimination, and ensure equal opportunities for individuals with disabilities in all aspects of life, including healthcare, education, employment, and community participation.
• We are against legislation, movements, rules, etc. that hinder disability rights: Our organization opposes any policies that undermine the rights and dignity of individuals with disabilities, including barriers to accessibility, discrimination in healthcare and employment, and efforts to weaken disability rights protections
HEALTHCARE AFFORDABILITY & TRANSPARENCY
• We are for healthcare affordability and transparency: Our organization advocates for policies that promote healthcare affordability and transparency, empowering patients to make informed decisions about their care and financial responsibilities. We support measures to lower healthcare costs, increase price transparency, and improve access to affordable health insurance coverage, ensuring that individuals and families can access the care they need without financial hardship.
• We are against legislation, movements, rules, etc. that hinder healthcare affordability and transparency: We oppose any policies that perpetuate healthcare cost escalation, impede efforts to increase price transparency, or limit access to affordable health insurance options, including policies that undermine patient protections related to pre-existing conditions and essential health benefits.
HEALTH EDUCATION & LITERACY
• We are for health education and literacy: Our organization believes in the importance of health education and literacy in empowering individuals to make informed decisions about their health and healthcare. We support policies that promote health literacy initiatives, patient education programs, and public health campaigns aimed at raising awareness about chronic, complex, and rare conditions, prevention strategies, and available resources for disease management and support.
• We are against legislation, movements, rules, etc. that hinder health education and literacy: We oppose any policies that undermine efforts to improve health literacy, restrict access to accurate and reliable health information, or perpetuate misinformation and stigma surrounding certain health conditions, hindering individuals’ ability to make informed choices about their health and well-being
HEALTHCARE SYSTEM ACCOUNTABILITY
• We Are For Healthcare System Accountability: Our organization champions robust accountability measures within the healthcare system to ensure that healthcare professionals and institutions are held to the highest standards of conduct and performance. We support laws and regulations that enforce transparency, protect whistleblowers, and provide mechanisms for patients to report malpractice, negligence, and abuse without fear of retribution. We believe in a system where patient voices are heard, validated, and acted upon to improve healthcare delivery.
• We Are Against Practices That Undermine Accountability In Healthcare: We oppose any practices or policies that allow healthcare providers and institutions to evade accountability for their actions. This includes resisting efforts to weaken malpractice laws, opposing measures that limit patient recourse in cases of negligence or abuse, and rejecting any attempts to diminish the transparency of healthcare operations. We stand against any systemic barriers that prevent patients from reporting misconduct or receiving justice and quality care.
PEOPLE OVER PROFIT